Notable quote: I do these talks to make a point. Recipient of Los Angeles Business Journals Small Nonprofit of the Year, the foundation provides grants to families affected by CF, offering both emotional and financial support. Wineland was moved by the communitys support when she was in coma. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Iran man who beheaded wife jailed for eight years, Celebrities who say their children will get no inheritance, Polar bear kills woman and boy in Alaska village, Baby among six killed in possible cartel hit in US, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. [4], Wineland was born with cystic fibrosis in Austin, Texas. Claire and her mother beamed in a photo posted on social media after they learned her transplant was a go. She died on Sunday September 2, 2018, after suffering a stroke following a double lung transplant. Despite emergency surgeries, and what her mother described as "Herculean efforts" to try to save her, the daughter she knew was gone. "It hurts everything inside of me to make this video," she said into the camera. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure. She did. A double-lung transplant, when successful, can add years to a patients life. Search by Name. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. Yeager posted a video of herself doing a happy dance with friends in the waiting room. Death is Inevitable. She was an avid dog lover and had a dog named- Daisy.. Im not an innocent and Im not a child. Wineland was a singer, artist, and composer. [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). Its about what youre making of your life and whether you can find a deep pride in who you are and what youve given.. I'm not an innocent and I'm not a child," she wrote in March. Youll be missed deeply. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live and give more. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. She underwent more than 30 surgeries during her lifetime. Magnolia Shorty Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She was a wonderful person and the world . Also, Claire's corneas and tissue was recovered and she will be able to enhance the life of up to 50 people," a family services specialist wrote to Yeager in an email message. When it came to her care, she knew her body best -- what worked for her, what didn't and how far she was willing to go.So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. Sign up here to get The Results Are In with Dr. Sanjay Gupta every Tuesday from the CNN Health team. Her foundation said she had died peacefully, surrounded by family. Jace Prescott Cause of Death, Date of Death, and More! The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. According to her, pitying ill people was disempowering them. She has a younger sister, Elanore Nordquist. Claire Lucia Wineland (April 10, 1997 - September 2, 2018) was an American activist, author, speaker and social media personality. Claires parents learned to trust their independent and strong-willed daughter. Cystic fibrosis is a genetic condition with no known cure. Claire Lucia Wineland (April 10, 1997 September 2, 2018) was an American activist, author, speaker and social media personality. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. Is there someone you miss whose memory should be honored? Died: Sunday, September 2, 2018 (Who else died on September 2?). A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. Today, Claires Place Foundation continues to carry on Claires legacy. I'm Claire's little sister and I'd just like to say that I" I'm Claire's little sister and I'd just like to say that I really really appreciate all the kind" 115k Likes, 5,583 Comments - Claire Wineland (@claire.wineland) on Instagram: "hey this is Ellie (@ellebell_74 ).. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. "The family intends to honor her memory by continuing to advanceClaire's Place Foundation, which she established to financially support others affected by her lifelong disease. I didnt expect to have a chance. She has a younger sister named Ellie Wineland. Im grateful for my own head and for all the weird things in it. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare.The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. In one of the last videos Claire posted, she went where she hadnt before. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. Claire Wineland, who inspired millions on YouTube chronicling her cystic fibrosis battle, has died after a lung transplant By Kyle Swenson September 4, 2018 at 3:58 a.m. EDT YouTube star. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. Claire Wineland Dies at 21 After Receiving Lung Transplant Inside Edition 11.4M subscribers Subscribe 69K 2.8M views 4 years ago #InsideEdition YouTuber Claire Wineland, who chronicled. Life isnt just about being happy. Im just really overwhelmingly grateful for all of this. she posted on Twitter, not long before she was wheeled into the operating room in San Diego. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. The BBC is not responsible for the content of external sites. Here are some ways. Save my name, email, and website in this browser for the next time I comment. She sat in an educational meeting at UC San Diego Health's transplant center and diligently took notes.Revealed on her left ankle was a tattoo: the thumbs-up "Don't Panic" logo from "The Hitchhiker's Guide to the Galaxy. The cause of death was a massive stroke she suffered soon after the transplant surgery. We invite you to share condolences for Claire Wineland . [3] The foundation offers both emotional and financial support through their Support Families Network andthe Extended Hospital Stay Grants program. Associated With She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. The Times-Picayune Homepage. But last month, as . It's not about how you feel second to second," she said. Claires remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". Submit an Obituary. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to the Cystic Fibrosis Foundation. Wineland stated she did not have the energy or the money to take the case to court. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Its not about how you feel second to second, she said. A supportive space for people & families affected by Cystic Fibrosis. pic.twitter.com/BsTEFmquR7. She joked that the squats she was doing, upon doctors orders, would help get her more than lungs. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. I am 17 years old and a senior in high school. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. The cause of death was a massive stroke she suffered soon after the transplant surgery. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, Maximum two drinks a week, Canada guidance advises, US porn star declared unfit for sex crimes trial. https://www.thefamouspeople.com/profiles/claire-wineland-42459.php. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited cures, telling her to eat more pineapple or that a mushroom cleanse would take care of everything. Cystic fibrosis did not define Claire Wineland. I have found a new hero, her name is Claire, I am a US Marine and a Retired Police Officer, and just recently viewed on of Claires Videos on U-Tube, I became instantly in love with her, as Im sure many have. Read about our approach to external linking. Sympathy . Her first uploaded video, "I stopped doing the Clarity Project because I got screwed over," revealed that The Clairity Project was operated by a video editing company and she had little to no control or input over the editing of her videos apart from their filming and creation. She'd travel, answer calls for speaking engagements and put energy intoher foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. "Go enjoy it, 'cause there are people fighting like hell for it.". She has gone on to become an advocate for others suffering from the disease she has had since birth. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. In August 2017, after taking a break from YouTube videos for a year, Claire Wineland returned with a new channel. Claire Wineland's greatest wish, her mother said, was that "her foundation will live on, even in her absence.". She watched one of her doctors squirm as he gave her the safe-sex talk. "I didn't realize how much I didn't expect to live this long. The cause of death was a massive. Wineland founded the Claire's Place Foundation at age 13. "Go enjoy your life. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. She was 21. Senior producer, Legacy.com. She performed with Philips Breathless Choir, as a solo singer. You can have a painful life. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. Obituaries Section. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. Check out the death cause, death date, and more facts about the. Jace Prescott died at age 31, too young. By mid-August, she was back on and feeling ready.She'd worked hard to get there, was focused on her self-care and getting stronger. She loved every moment of her life, even those days when she was in hospital. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. She never emerged from her medically induced coma. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. Claire Wineland's death was caused by stroke. Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. [7], Wineland was chosen to be the keynote speaker at AARC Congress, the 63rd International Respiratory Convention and Exhibition. Wineland was invited as a speaker at many international conferences. Claires Place Foundation is planning to continue extending support to patients. Dave Thomas Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! View this post on Instagram She had a popular YouTube channel, gave There is no passionate rant to be had here I am just happy and thought I would let you all know. March 04, 2022 "Disability is not the word that should be used to describe what Claire had because she turned it into her platform. ", Claire took the gift of life and her health seriously, but she didn't take herself too seriously. See the events in life of Claire Wineland in Chronological Order, https://verilymag.com/2016/12/claire-wineland-cystic-fibrosis-living-with-chronic-illness-inspiring-women-news-1612, https://www.tah-heetch.com/claire-wineland-on-cystic-fibrosis-death-wish-coffee-company-hjh9onjzix7b1usu.html, https://www.mirror.co.uk/news/us-news/youtube-star-claire-wineland-dead-13190564, https://www.lionsroar.com/claire-wineland-cystic-fibrosis-activist-dies-at-age-21/, https://centredailytimes.org/health/claire-wineland-dead-21-youtube-star-passes-week-undergoing-44680242, https://www.wpsdlocal6.com/2018/09/03/she-expected-to-die-young-then-came-the-call-that-offered-new-life/, http://www.newindianexpress.com/entertainment/english/2018/sep/09/documentary-on-author-activist-claire-wineland-in-works-1869742.html. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. 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